Expert by Experience Volunteer (Paediatric Gastroenterology)

Role Summary

As a volunteer, you will help families feel understood and supported as they navigate the challenges of living with IBD. Your insight and lived experience can make a real difference to a family’s hospital experience and help ensure that no one feels alone on their journey.

Responsibilities

• Help families feel understood and supported as they navigate the challenges of living with IBD.
• Communicate in an approachable, empathetic, and confident manner with children, young people, and families from a wide range of backgrounds.
• Listen without judgement, respect confidentiality, and recognise when support from clinical staff is needed.
• Support patient and family engagement events, service improvement projects, and research activities throughout the year.

Qualifications

• Approachable, empathetic, and confident communicating with children, young people, and families.
• Have lived with Inflammatory Bowel Disease (IBD) or have a family member who has lived with IBD.
• Ability to listen without judgement, respect confidentiality, and recognise when clinical support is required.
• Willingness to be part of a multidisciplinary team and to accept full training, support, and supervision.

Benefits

• Full training, support and supervision will be provided.
• Opportunity to become a valued member of our wider clinical and research community.
• Contribute to the care and experience of patients and families while helping shape and improve paediatric gastroenterology services.
• Chance to support patient and family engagement events, service improvement projects, and research activities.

We welcome applications for all positions in the organisation irrespective of people’s age, disability, ethnicity, race, nationality, gender identity, sex, sexual orientation, religion or belief, marriage and civil partnership status, or pregnancy and maternity status or social economic background.

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