The Community Engagement & Support role is about providing greater sustainability and resilience for the Fahr’s Disease community and Fahr Beyond as a charity. The post holder will be building the capacity for Fahr Beyond to provide support for people living with Fahr’s and their families through creating a volunteer network that can provide an ongoing fortnightly support group. Additionally, through working with other organisations, the post holder will develop more support pathways and opportunities for patients; this is envisioned as strategic work within the Parkinson’s and Dementia space.
This post will also play a key role in bridging Fahr Beyond’s work with the community and medical professionals to develop awareness of Fahr’s Disease.
What will you do in the role?
Volunteer Mobilisation & Management
- Support the development of a volunteer strategy for Fahr Beyond
- Actively manage the establishment of a volunteer network utilising prior expressions of interest, and you will support the onboarding of volunteers
- The main point of contact for volunteers and help resolve matters they may have
Engagement & Communication
- Monitor and respond to incoming correspondence to Fahr Beyond, along with assigning any actions for response to the appropriate volunteer
- Support the trustees and volunteers with managing Fahr Beyond’s social media
- Work with Fahr Beyond volunteers to ensure that Fahr Beyond maintains regular communications with patients, medical professionals, and key partners
- Represent Fahr Beyond at sector events and/or meetings, particularly with organisations we are a member of
Project & Event Management
- Support (and if required coordinate) Fahr Beyond’s education and awareness events for Fahr’s Disease, and events connecting multiple stakeholders in the Fahr’s Disease space
- Support volunteers in creating fundraising and community involvement activities (online and potentially in-person)
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