Patient Involvement and Inclusion Lead

Company: Cardiff and Vale University Health Board
Apply for the Patient Involvement and Inclusion Lead
Location: London
Job Description:

Responsibilities

The post holder will be central to the development, implementation, and oversight of the Clinical Research Facility (CRF) Patient and Public Involvement and Engagement (PPIE) and Equality, Diversity and Inclusion (EDI) strategies for the period 2026‑2029. The post holder will act as the primary contact for researchers and other CRF staff members who wish to involve members of the public in their work or research, respond to enquiries, meet with researchers to discuss and understand their needs, and provide expert advice on PPIE and coordinate meetings with public members. They will signpost to and provide training, support, and resources to ensure researchers and staff have the skills, knowledge, and confidence to involve PPIE members at different stages of the research cycle. The post holder will coordinate and manage the CRF PPIE group, answering questions from new and existing members, organising training and events (including quarterly online group meetings), facilitating interactions between researchers, CRF staff members, and public members, and overseeing the process of obtaining meaningful involvement opportunities. Consistent communication will be maintained with the CRF PPIE group via a biannual newsletter, regular emails, telephone calls, and face‑to‑face catch‑ups as required. The post holder will promote and raise the profile of the CRF, the PPIE group, and recruitment of new members by working with the Trust Communications Team to produce high‑quality promotional materials and with the Trust EDI Team for outreach work to engage seldom‑heard communities. Additionally, the post holder will develop and oversee the CRF EDI working group (which also consists of public members), organise and chair meetings, establish a programme of staff training on core EDI topics, correspond with group members, and produce reports based on evaluation surveys following training and events. They will act as the first point of contact for community outreach initiatives such as the CRF’s work‑experience and school engagement programmes, coordinate work‑experience students’ timetables, allocate placement mentors, liaise with schools, lead school open days and outreach events, and manage relationships with teachers, career counsellors, CRF staff, and researchers. The post holder will monitor and evaluate all of the CRF’s PPIE and EDI activities by producing quantitative and qualitative evaluation surveys and written reports, sit on the CRF Management Board, provide written and verbal reports to the CRF Manager, Director, and other stakeholders, develop a systematic approach to measuring the impact of PPIE and EDI activities, and provide external reporting to the National Institute for Health and Care Research (NIHR). They will also maintain records of important information such as PPIE group contacts and PPIE staff contacts across Kings Health Partners (KHP) and the UK CRF Network.

Qualifications

  • Educated to degree level or above.
  • Post‑graduate qualification or working towards a Master’s or equivalent experience.
  • Experience of Continuing Professional Development.
  • Relevant qualification/training in working with patients, volunteers and/or communities under‑represented in research.
  • Familiar with Good Clinical Practice & Certification.
  • Significant experience working in a charity, healthcare, or research environment.
  • Significant PPIE experience, or experience working with and supporting volunteers or patients.
  • Experience in planning and delivering PPIE projects and activities.
  • Experience in designing and facilitating workshops and/or training sessions.
  • Experience delivering outcomes within scope, on time, and within budget.
  • Experience of writing documents and communication materials for PPIE audiences.
  • Experience of working with diverse groups of people and promoting inclusivity.
  • Experience of designing and implementing equality, diversity, and inclusion (EDI) projects within a healthcare or research context.
  • Experience of effective multidisciplinary team working.
  • Experience of contributing to reports for internal and external stakeholders and funders.
  • Experience of managing and maintaining website content.
  • Line management and performance management experience.
  • Knowledge of PPIE methodologies and the benefits and challenges of implementation.
  • Knowledge of research methodologies, quality, standard setting, benchmarking/audit.
  • Articulate with advanced written and oral communication skills.
  • Excellent planning and organisational skills.
  • Excellent IT skills including Word, Excel, PowerPoint, website platforms and patient database systems.
  • Flexible approach towards teamwork and patient/family involvement.
  • Enthusiastic, professional and accountable.
  • Knowledge of health inequalities.
  • Discussion/focus group moderation and facilitation skills.

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Posted: July 14th, 2026