At a pivotal moment for Cardiomyopathy UK, we seek a new Chief Executive to lead the organisation into its next chapter., We are the only charity in the UK supporting children, young people and adults with the life-limiting heart condition cardiomyopathy. We are a community of people affected by cardiomyopathy, medical experts and charity healthcare professionals working to provide support and information, campaigning for better access to quality treatment, saving lives through raising awareness and providing hope through shaping research., As Chief Executive, you will help Cardiomyopathy UK move forward with confidence, reigniting and strengthening our team and ensuring we continue to be there for everyone affected by cardiomyopathy.
In your first year, success will be about bringing people together. You will be listening to staff, valuing their expertise and creating a positive, inclusive culture where everyone can do their best work. At the same time, you will help us reconnect with partners, supporters and funders, rebuild momentum and strengthen how we communicate our impact, including through our digital and social presence.
Looking ahead, you will guide us in delivering our current strategy through to 2028 while shaping what comes next. This means growing our reach across the UK, strengthening our voice in research and policy and building meaningful relationships across healthcare and industry. Over time, success will be reflected in greater awareness of cardiomyopathy, stronger partnerships and a wider, more inclusive community.
Above all, you will ensure we remain true to who we are – caring, ambitious and centred on “our people”, so that no one faces cardiomyopathy alone.
This role offers the opportunity to lead a respected, mission-driven organisation at a time of significant clinical and scientific advancement in the field.
We are seeking an inspiring and values-led leader who brings a track record of senior leadership, ideally within the charity, healthcare, or public sector to guide the organisation into the future.
This role requires a highly relational leader who can foster a positive and inclusive culture and harness the expertise of a committed staff team and volunteer network.
You will be externally credible and confident, able to represent the organisation at the highest levels, build partnerships with clinicians, researchers, funders and industry and champion the patient voice.
We are looking for someone who combines strategic capability with hands‑on leadership, who is comfortable balancing immediate organisational priorities with long‑term vision.
Above all, you will be motivated by purpose and committed to improving the lives of those affected by cardiomyopathy, while ensuring the organisation remains compassionate, community‑focused and impactful.
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