Head of Health Information and Engagement (12 months Maternity cover)
About us
Join an amazing charity that makes a difference for more than 110,000 adults and children in the UK with a muscle‑wasting condition. This is a role where you can really make a difference.
We actively encourage applications from individuals of all backgrounds, particularly those from under‑represented groups, including people from ethnic minority backgrounds, LGBTQ+ individuals, previous convictions and those with lived experience of the conditions we represent.
We are committed to fair and inclusive recruitment, with disclosure only requested where relevant at the appropriate stage.
We believe that by creating opportunities for all, we strengthen our impact and better support the communities we are committed to serve.
Muscular Dystrophy UK connects a community of more than 110,000 people living with one of over 60 muscle‑wasting conditions, and all the people around them. So everyone can get the healthcare, support and treatments needed to feel good, mentally and physically.
This is an exciting time to join Muscular Dystrophy UK. We recently launched our new 10‑year strategy to transform the lives of people living with muscle‑wasting conditions. Our vision is clear, a world without limits for people with muscle‑wasting conditions, and we won’t stop until we achieve it.
Main purpose of role
The Head of Health Information and Engagement will play a critical role in delivering Muscular Dystrophy UK’s (MDUK) 10‑year strategy by leading the development and delivery of trusted, accessible information and impactful engagement for both the muscle‑wasting community and the professionals who support them.
This role will be responsible for shaping and evolving MDUK’s portfolio of health and lifestyle resources, training materials, and community and professional events ensuring they are evidence‑based, user‑led, and effectively meet the needs of individuals living with muscle‑wasting conditions, as well as healthcare professionals across primary, secondary, and tertiary care.
Leading a dedicated team of three, the postholder will oversee the creation, maintenance, and dissemination of high‑quality printed and digital resources, and drive forward MDUK’s programme of community events and professional training.
Positioned at the heart of the Services and Support Directorate, this leadership role will ensure our information provision and engagement work is inclusive, strategic, and impactful empowering our community and enabling better care and support across the UK.
Other responsibilities
- Ensure that all actions comply with the Data Protection Act.
- Represent the charity externally if required and undertake other tasks as needed by the line manager.
- Occasional evening and weekend work as required.
- Seek opportunities to contribute to the development of the charity.
- Commitment to and an understanding of disability issues, equality, diversity and inclusion.
Qualifications
Significant experience in the development and delivery of health and social care information and support resources (digital and print).
Salary
£42,000 – 45,000 per year
Location
Head Office, London, SE1 (with flexibility for hybrid and homeworking).
Benefits
Alongside a competitive salary, we offer a comprehensive benefits package designed to promote wellbeing, work–life balance, and career development. Our offer includes great pension contributions, life insurance, cyclescheme, health cash plan, employee assistance programme, instant retail and events discounts, and much more.
Closing date
Wednesday 1st July 2026
Interview dates
Interviews likely to be held on Friday 10th July 2026. We are interviewing on a rolling basis and may close the advert earlier than the stated deadline if we successfully fill the role.
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